Living with PKU (paperback)

Outside the UK? See the international purchasing options.

A valuable resource for adults and teens with Phenylketonuria (PKU), or for families new to the disorder.

"Completely fabulous. Brilliantly written."
Suzanne Ford, Metabolic Dietician & advisor to NSPKU.

Pauline has lived with PKU for over forty years. In this honest account, she shares her experience and mistakes to help others navigating the difficult dietary treatment.

In clear and simple language, this book explains PKU and offers practical advice on:

PKU and mental health

Managing PKU clinics

Travel & emigrating

Women & PKU

Healthy eating and exercise

"Absolutely brilliant & factual...lots of very good advice."
S.M., adult with PKU.

"Skilfully compiled...readable for anyone new to PKU."
C.H., new to PKU.